Rare Revolution Magazine article

RARE Revolution Magazine article, Clinical Spotlight: "Crossing…

Letter to EU Health Commissioner Kyriakides

On 5 December 2019 we sent a letter to EU Health Commissioner…

Pierre Robin Sequence – Information Document for Parents

> Lire la version française ici > Lees hier de Nederlandse…

Rare Disease Collaboration… and Obstruction

Even if global policies support rare diseases, all the way up…

Rare Diseases Denmark – letter of support

Rare Diseases Denmark, a leading rare disease advocacy group…

Pro Rare Austria – letter of support

Pro Rare Austria took center stage at the European Conference…

A third letter to President Macron

On 12 October 2018 we sent a third letter to French President…

European Patients Forum – letter of support

The European Patients Forum is the largest patient advocacy umbrella…

Françoise Grossetête, Member of European Parliament – letter of support

Ms. Françoise Grossetête, a senior Member of European Parliament,…

EURORDIS – letter of support

The European Organisation for Rare Diseases (EURORDIS) is the…