Françoise Grossetête, Member of European Parliament – letter of support

Ms. Françoise Grossetête, a senior Member of European Parliament, has a background in law – and Ms. Grossetête personally served as the European Parliament’s Special Rapporteur for the EU’s 2011 Directive on Cross-border Healthcare. Ms. Grossetête knows cross-border healthcare law. On our daughter Lysiane’s behalf, she sent the letter below directly to France’s Minister of Health, Agnès Buzyn, making it clear that this situation is “unacceptable”, and that the rejection was legally unfounded.

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EURORDIS – letter of support

The European Organisation for Rare Diseases (EURORDIS) is the largest rare disease patient organization in the EU. EURORDIS wrote a highly detailed letter of support to L’Assurance Maladie, France’s national health insurance fund, explaining why they too believe the rejection violated EU law. EURORDIS has pledged to accompany us, Lysiane’s parents, in court, all the way up to the European Court of Justice. Read more